Our Fighter Boy

pending

went to see him twice today.

afternoon visit - could go by and see him in the afternoon because i had the appt with my obgyn. except for the c-pap, he was pretty much looking fine, excpet that he did look a bit pale. just thought that it was due to him being exhausted from all the things thats been going on the last few days. he was a bit cranky… but anyone would be with the irritating mask on one’s face and all… carried him for about an hour (precious precious moment) and listened to his complaints and as he pooped.

managed to talk to one of the cardiologist and this is the latest update -

they are currently still observing to see what is the cause of his rapid breathing. though his heartbeat and O2 level has somewhat stabalised, he is still breathing rapidly which is a concern. there is no infection, and so they are currently waiting to see another blood sample (if i’m not mistaken its the one for the blood platelets) and to see if he gets better should the fluid is removed from his lungs. as for surgery, they “have a plan for action” but when it is that they will proceed with the surgery, the doctors themselves are still pending that decision.

met with Dr Colette again, its always nice to see her (she was so sweet to say, “he’s such a little fighter isn’t he?”)… and 3 other doctors; and its just interesting that they are all asking me if i have any news of when the surgery is gonna take place, if any. also, the nurse in charge of Izhar today happened to be one of the nurses who helped receive him on the day he was born. nice girl. got to know quite a bit about other cardiac patients’ history from her, and she kindly said, “try not to worry so much about it”. actually found out about some other kids who had to go through much more stuff then Izhar has at this age.

stayed there for about 2hrs, til he slept soundly…

evening - upon seeing us, the afternoon nurse who was still on duty said to me, “hi! oh. he was looking a bit pale so the doctor decided to give him some ribena” the statement didn’t register in my head at all, until i went to his bed. then i saw the tube with the red fluid flowing into his arm.

he was actually given blood since 6pm, and it wil be through only at 10pm.

my heart almost broke. my mind went blank. i ddin’t even know what to think except to just talk to Izhar. both Azhar and i were on the brink of tears… but we knew we couldn’t break down when our lil fighter is being so brave.

after a while, Izhar woke up and once he saw me he started crying… dear god, i’d be lying if i didn’t feel like bawling on the spot too for being so helpless… for not being able to help him take away his pain, except to tell him that we love him and read prayers to him…

hopefully he’ll be better when we see him tomorrow.

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